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Post by Gill on May 14, 2015 10:52:44 GMT
Hi everyone, we have just had the below post on the old forum site - can anyone help Rebecca?
Thanks x
Hi
My mum has just been told she has cancer on her tonsil, she is 57, and we both are clueless about cancer and have just been in shock. We don't know anymore information until we go on Wednesday to see Dr Rogers. If anyone has been through this any advice would be much appreciated, what questions should I to ask the doctor, what can my mum do to help herself through this, what shall we expect, and can we pick what treatment to have?....thanks.
Rebecca
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Post by Gill on May 14, 2015 16:15:40 GMT
Hi Rebecca, although I do not know too much about tonsil cancer my husband had mouth cancer so can totally understand what you are going through, the shock you feel and the not knowing what is going to happen. Or even understanding much about that type of cancer - I had no idea there was such a thing! One thing I would suggest is that when you go and see Simon Rogers take a pen and paper - write down any questions you do have before hand so you remember to ask them and also take a few notes of what he says to you as well. I remember when we went along for the first time we were, like you, in shock and there probably was a lot of points that the surgeon told us about that we totally forgot. They say you only take in about 20% of what you are being told! www.cancerresearchuk.org/about-cancer/cancers-in-general/cancer-questions/tonsil-cancerThe above link will give you a bit of information beforehand about what Professor Rogers is likely to talk about. However try not to google "Tonsil Cancer" and read a lot about it as every person is very different and you may read a lot which just is not relevant to you and your mum. Good luck, thinking of you both x |
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Post by John B Isle of Man on May 14, 2015 16:34:52 GMT
Hello Rebecca,
I have been through tonsillar cancer and may well be able to help with some advice from my experience.
Probably the best thing is to give me a phone call on 01624 827723 or send an e-mail to johnbeckett@manx.net.
My diagnosis was October 2012 out of the blue aged 64. Living in the Isle of Man initial scans were done here but after that all the detail and plan was done at Aintree and the treatment at Clatterbridge. I was discharged from Clatterbridge January 2013.
I know Gill Amos of the HaNC Group; she was here recently in the Isle of Man at our April Manx Swallows H&NC patient get together which I help run and we are in close communication.
My wife Heather and I met up with Prof Simon Rogers at Aintree a while ago.
Consultant Jeff Lancaster at Aintree led my diagnosis/treatment and my oncologist was Dr Shenoy. I attend regular three monthly follow ups with them in Aintree to make sure all is well ... and it is.
I wrote an article for the HaNC newsletter covering my experience but it would be better to have a chat.
Looking forward to hearing from you and please send my best wishes to your Mum.
This news will be a whirlwind shock to you all but I am very pleased to be able to share with you my personal experience and thoughts which I am sure will be a help.
John Beckett
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